Until he was diagnosed at age 26, Kevin Schnurr had no idea what Alport syndrome was. And even though the worst is now behind him — thanks to a kidney transplant that saved his life — the ultra-rare genetic condition still defines his life and his career. Schnurr, 33,…

Results from a Phase 2 clinical trial support the potential of Talaris Therapeutics’ investigational cell therapy FCR001 to prevent recurrence of kidney failure in patients who have undergone a living donor kidney transplant, including patients with Alport syndrome. The data were presented at the…

Children and adolescents with Alport syndrome who underwent kidney transplants are at higher risk for developing kidney infections by BK virus, a South Korean study suggests. The study, “Higher Incidence of BK Virus Nephropathy in Pediatric Kidney Allograft Recipients with Alport Syndrome,” was published in the Journal of…

Alport syndrome (AS) patients in Japan undergoing a kidney transplant were found to have long-term survival rates similar to patients whose transplant was due to other causes of kidney failure, a study in that country reports. The study, “Long-term survival in Japanese renal transplant recipients with Alport syndrome:…

In patients with acute kidney inflammation, also known as glomerulonephritis, recurrence of the disease is a significant factor underlying failed kidney transplants, a study suggests. The study, “Clinical Outcomes of Kidney Transplantation in Patients With Biopsy-Proven Glomerulonephritis,” was published in the journal Transplantation Proceedings. Clinical outcomes of patients with…

Although the type of genetic mutations causing Alport syndrome influences disease progression and severity, it does not impact patient outcomes or survival chances after a kidney transplant, a study shows. The study,  “Genotype and Outcome After Kidney Transplantation in Alport Syndrome,” was published at the journal…

A rare case of an Alport syndrome patient with end-stage kidney disease and an inherited tumor-causing growth disorder — complicating his eligibility for a kidney transplant was reported. The study, “A patient with MEN1 and end-stage chronic kidney disease due to Alport syndrome: Decision making on the eligibility of…

Analysis of kidney tissue can be an essential step for accurate diagnosis of complex conditions affecting the filtration function of the kidneys, contends a case report published in the journal Transplantation Proceedings. Alport’s Syndrome is a hereditary disease caused by genetic defects in the gene that encodes the several…

Since a Pennsylvania mother of two underwent a kidney transplant, whose donation was due to a video that her children had posted on Facebook, the National Kidney Registry’s (NKR) Paired Exchange Donation program has been gaining increasing attention. Diana Zippay, 36, began to lose kidney function as a result of her Alport…

Diana Zippay, from Monongahela, Pennsylvania, and diagnosed with Alport Syndrome, recently announced on her Facebook page that she has found a lifesaving kidney donor and soon will receive the transplant that will give her a second chance at life. Zippay said she found a donor through the United Network…